The mid to long term outlook of my sarcoma has always been been poor but the speed of progression and biology indicated that it was slow moving and this was very good, e.g. the single and only tumour in my lung they cut out in November was just .5 cm (after maybe 3 years growth); with slow growth they have lots of treatment options. When tumour pops up they just spot radiate/laser or surgically remove. Many people last 20 years with this approach. When you get metastasis spread (secondary cancer) of synovial sarcoma it seems difficult to cure but they are very good at delaying any spread.
|Arrows identifying some of the Mets, round cricket ball |
likely cause of pain issue
They've ruled out surgery and I am in palliative care; the aggressive nature of the tumours has opened one door on a chemo (Ifos) regime which is good at attacking fast growing tumours; I'm expecting to start this treatment next week. There is an outside chance of cure, but most likely this will just buy us some time.
|Heathier lung - Dec 2012|
But I have things to do and the fat lady hasn't started warming up her singing voice yet.
- Family holiday, assuming treatment goes well, beaches, heat, water and piña coladas sounds like a good idea, or maybe a holiday or two in a central otago or otematata crib.
- Family wedding, Nephew Tom and Jen are "going to get married ", thats going to be so much fun
- Few old mates incoming for property makeover (& a few beers and tunes)
- and finally my favourite thing; just time with Kat, the kids, whanau and friends.
How am I feeling? Its a bit surreal, we've grieved and been sad at many times during this cancer journey. We knew the odds weren't great but certainly didn't think that it would accelerate like this. I want to be in the best possible state (mind, body & soul) to again fight and overcome if possible. My Christian faith is providing me with a strong base and comfort as we face the next few months. Please add me and our family to your prayers.