My journey: Living with and overcoming Synovial Sarcoma. A rare and nasty Cancer. Not a how-to guide but ideas and observations during my experience so far. There are only a few SS survivors publishing and I've found their information helpful and reassuring. The site is also to update my wonderful supporters on my progress.
Image above was pre-diagnosis by my daughter of the 'Alien Baby'. This tumour has been removed but the battle to eradicate the disease continues.
I popped back to life over the weekend and getting back to the state of wanting to participate in every day things. Friday and Saturday last, I pretty much slept most of day (and night) but following that the grey has cleared.
The picture left is King Theoden under a spell in Lord of the Rings and I have always loved the imagery of Gandalf enticing him out of his spell. I think a lot of us at times can get covered in a greyness, my issue was major surgery but often it's other life issues that affect us. My Galdalf on Saturday was Kat who enticed me from bed with a half a glass of Guinness and an offer to sit on our deck and admire a particularly beautiful evening.
Recovery has been progressive and not as dramatic as King Theoden, although I feel in my mind it was a significant weekend. I had my first major outing yesterday and went to church, which was a bit daunting but I'm pleased to have done it. We had a fun full day following with friends and family at home and I was comparatively very active. Another first was last night I slept through night without need of additional painkillers.
Physically I am able to do a lot more, twist in the torso, easily getting up and down, arms above my head and stable walking, including on uneven surfaces. Healing is going very well, with a lot of stiffness in spine gone, the wound healing well and swelling reduced. A problem I have now is I cant do what I would like to do. No strength and although improving the length of activity still very short. I still need to be horizontal for most of day or else pain kicks in, but fantastic having mind engaged. I can foresee and looking forward to physio and exercise in a couple of weeks time and in no time I will be boundin around like normal.
Click HERE to put a smile on your face and to learn more about boundin and recovery from setbacks. (To Kat, friends and family, thanks for being my Jackalope)