One moment holidaying and enjoying swimming and relaxing in hot high mountain rivers to being rushed to hospital; to face difficult decisions on treatment options. Both lungs had accumulated significant amounts of cancer related material, in small isolated compartments. Not just METS but also blood and water. We came to the conclusion that we had no viable curable treatment options.
My team at Ward 8C Dunedin public hospital has been brilliant at fighting and trying to conquer my SS cancer. But even these super heroes, couldn't perform miracles.
Our family has now been resident in the Otago Community Hospice for 5 days. My stay has been refreshening and reviving. Firstly the drugs and care put me on a even keel so that I have been able to engage and have quality time with my family and friends. It's has been an Oasis/ Sanctuary which has allowed us to chat, laugh, talk, cry and to appreciate the quality time that we have left together. I am pain free and at Peace!
To my good friends and fellow members of our synovial sarcoma community... SO LONG. Thanks for the support, it has been outstanding and allowed me to fight the good fight. I encourage you to actively engage and participate, make friends, create a strong community that will enable us to improve the odds on overcoming this horrid disease.
Today has been an exciting day, my eldest daughters Arihana's, 21st Birthday and we've had a impromptu party. Ive attached a example of our down-under version reggae version Newworldson.
Hospice Reggae - Newworldson
Life is good.... I hope to see you down the line