On Friday I'm having some important imaging work done at the hospital which will decide the next course of medical action. The imaging is to analyze the tumour development in my lungs and to assess if chemo treatment is making a positive difference. Obviously doesn't make sense going through such a tough treatment if it's not working; yet concern is what other effective treatment options they have left; are we getting to the bottom of barrel?
I am feeling good, breathing better and in less chest pain and loving this mid-winter sun; something has positively changed.
I think Chemo is my 'Devil I know' treatment and I would be happy if they roll for 4 more cycles which they've discussed although they will only do assuming good imaging. Maybe there is a better option?
They've also talked about using a new technology drug for sarcoma called Yondelis which is getting positive press on the forums and research sites; but the drug is not funded in New Zealand and some complexity trying to get sorted although not impossible.
So what I'm I wishing for? I hope that their technical analysis is accurate and that the medical team make good decisions. I want a positive day when I meet my oncologist next week, with evidence of stabilizing or slowing progress and no significant new developments. I hope that Kat, I and Whanau have the courage and strength with whatever the outcome is to understand, accept and positively move forward. Overriding all, I hope for time, lots of it.
G :-)
My journey: Living with and overcoming Synovial Sarcoma. A rare and nasty Cancer. Not a how-to guide but ideas and observations during my experience so far. There are only a few SS survivors publishing and I've found their information helpful and reassuring. The site is also to update my wonderful supporters on my progress. Image above was pre-diagnosis by my daughter of the 'Alien Baby'. This tumour has been removed but the battle to eradicate the disease continues.
All of our good luck wishes coming your way Gary, will be thinking if you all. JODI
ReplyDelete"breathing better and in less chest pain" Not the most poetic sentance ever constructed but it brightened my day up. I don't believe in no causation so this has to be good news. Looking forward to your results, the worlds not ready to be without you yet.
ReplyDeleteYou have a lot of friends watching your back Gaz, so go with confidence. Kia kaha
ReplyDeleteLuck Luck Luck Luck Luck. And hope that you can get that Yondelis drug here. If it's expensive we will just have to start a fundraiser. Or suggest to the doctors that you trial it for NZ.
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