Saturday, February 4, 2012

Thanks for the help and support!

Thanks for your comments and emails of support. It has been a funny old time dealing with this, the surgery was relatively easy to deal with, the head stuff far harder. The spinal surgery I had was pretty brutal so anything else seems pretty easy in comparison although you still need to get through it. I am a little at the end of my tether with medical procedures after having so many over the last couple of years, so when the doctor first rung to say "more surgery" I was less than enthusiastic. But you have no choice and you need to stump up and confront the procedure and get through. Mentally giving yourself a badge and remembering how well you coped with previous procedures helps you when you are confronting a new procedure.

Way back in the beginning I found this inspirational guy and made this post:
An SS Survivor to admire: 
Kirk Souder Read his story, not a treatment plan and prognosis I would like to follow but you have to admire his tenacity and courage.

Comparing notes I've nearly had as many procedures in my treatment plan, just now hoping to also come out with the 20 year positive outcome and attitude.

In answer to questions:
- Ribs were very sore post surgery although progressively gets better, 6 weeks post still tender although not limiting or requiring pain meds. Nurses said the pain from a thoracotomy surgery is up there with knee surgery and immediately post surgery it was pretty uncomfortable and good pain management is a necessity.
- Scar, yes another good one on the back although it healed well and quickly. If you look at pic closely I have a couple of freckles for eyes and it looks a bit like a demented happy face. Nurse referred to it as a shark bite scar.     
- Michelle,  I have no great desire to join the 1 lung camp but its comforting to know that we have a lot of spare lung capacity if the need arises. I follow your blog and its great to see you out and about and living life, its inspiring! Personally I haven't found any difference with breathing.
- Ola Flavi, Elodie, Lynda, Simon, Malcolm, Paul.... thanks for the words of encouragement. 

Pretty much I had recovered from the major surgery 3 weeks post, but if you seeking a guide for how long you need off work for thoracotomy I would suggest 4 weeks.  We had a very restful time at home over recovery, it was a very hot summer downunder and our large property was an oasis where we were able to hide away. I went back to work a couple of weeks ago and thats going well although inevitably it just takes awhile to pick the pace up and participate.  

Officially I am in remission, although high risk and another scan due in March or April. We are hoping that this is gone completely, but a short term goal of getting through 2012 with no further surgery or treatment would be pretty cool.
Ciao fo now


  1. I'm so proud of you, and want to talk to you, hopefully become as optimistic as you. This lung stuff for me tomorrow is freaking me out! I read your blog for courage, don't stop posting!


  2. That sure is a smiley face - and now you can go out on a surf board at St Clair and scare the young surfers with your shark bite.

  3. I recently came across your blog and have been reading along. I thought I would leave my first comment. I don't know what to say except that I have enjoyed reading. Nice blog. I will keep visiting this blog very often.


    Cancer Treatment Guide

  4. I found this thing called "steel pilates" its a course for men with cancer. I reckon it looks real good and would be great for you to help you regain a bit of core strength.
    I have given a pamphlet to Kat about it. Its done through back in motion physiotherapy.
    heres the link
    give it a read over and see what you think!!!
    lots of love uncle : D


Thanks for your comments Gaz