My journey: Living with and overcoming Synovial Sarcoma. A rare and nasty Cancer. Not a how-to guide but ideas and observations during my experience so far. There are only a few SS survivors publishing and I've found their information helpful and reassuring. The site is also to update my wonderful supporters on my progress. Image above was pre-diagnosis by my daughter of the 'Alien Baby'. This tumour has been removed but the battle to eradicate the disease continues.
Friday, April 29, 2011
Thursday, April 7, 2011
Is that a light at the end of the dark and long tunnel
24 days before I complete the chemo treatment which is hopeful the last medical procedure for my sarcoma. Post will be some recovery and a CT scan to get sign-off that I am clear of cancer for now. Then from mid May I plan to step up the physical recuperation of my new back and progressively get back into the business.
I am very tired from all medical procedures and after bad chemo cycle 3 one of my consultant callled this 'fatigue', not to be confuse with 'sleep tired'. Cycle 4 has been a great cycle which has given me confidence that I will complete the whole procedure and not melt down along the way. We are very well geared up with support structures with treatment and this makes a big positive difference. I am now targeting to come out of treatment strongly and for it to be weeks not months to overcome most of the side-effects of Chemo. Its going to take longer to recover physical fitness and strength and thats fine, as a a key factor will be final healing with the spine and development of the core muscle's. The rehab work at ISIS and DIY landscaping and construction have been great at straightening me up and getting a base fitness, but still a way to go and I will need to do this over a longer period, Christmas summer holidays may be a good target date to do something like this: http://www.doc.govt.nz/parks-and-recreation/tracks-and-walks/canterbury/aoraki-mount-cook/mueller-hut-route/.
I am very tired from all medical procedures and after bad chemo cycle 3 one of my consultant callled this 'fatigue', not to be confuse with 'sleep tired'. Cycle 4 has been a great cycle which has given me confidence that I will complete the whole procedure and not melt down along the way. We are very well geared up with support structures with treatment and this makes a big positive difference. I am now targeting to come out of treatment strongly and for it to be weeks not months to overcome most of the side-effects of Chemo. Its going to take longer to recover physical fitness and strength and thats fine, as a a key factor will be final healing with the spine and development of the core muscle's. The rehab work at ISIS and DIY landscaping and construction have been great at straightening me up and getting a base fitness, but still a way to go and I will need to do this over a longer period, Christmas summer holidays may be a good target date to do something like this: http://www.doc.govt.nz/parks-and-recreation/tracks-and-walks/canterbury/aoraki-mount-cook/mueller-hut-route/.
My top priority post treatment is 'health'. My body created or at least supported the rapid development of cancer and I believe my lifestyle contributed to this. So in next few weeks I'm going to use the Hauora wellness model, here , to see what changes I need to make. My hope this will improve my Joule de Vivre, not reduce.
Morning of 2nd day in hospital chemo cycle 5, had a great sleep last night and have food on board. I am currently unteethered from drugs for my 1 hour in 24. Soon to have a shower and a few laps of the ward, luxury.
Ciao for now.
Gary
Sent from my iPhone
Wednesday, April 6, 2011
Sunday, April 3, 2011
Gazza's getting his workshop sorted
and its looking good!
He now has his own man cave and can be found out there at all odd hours fixing things..putting up spouting and installing our new water tank which is very exciting.And for those of you wondering how he is doing all of this..he does take it slowly and comes in very tired and sore but VERY pleased with himself. I like him out there doing this its good:-)
We are pleased only two more chemo cycles to go and we can start practicing some normality again.
Light at the end of the crawl space..which reminds me I was in the ceiling this last week cleaning out old batts and rat poo.YUCK!
The roof is off our house at present too which makes for an interesting Autumn.
Hopefully the rain will divert this week and we can get it sorted.Ciao KAT
He now has his own man cave and can be found out there at all odd hours fixing things..putting up spouting and installing our new water tank which is very exciting.And for those of you wondering how he is doing all of this..he does take it slowly and comes in very tired and sore but VERY pleased with himself. I like him out there doing this its good:-)
We are pleased only two more chemo cycles to go and we can start practicing some normality again.
Light at the end of the crawl space..which reminds me I was in the ceiling this last week cleaning out old batts and rat poo.YUCK!
The roof is off our house at present too which makes for an interesting Autumn.
Hopefully the rain will divert this week and we can get it sorted.Ciao KAT
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