My journey: Living with and overcoming Synovial Sarcoma. A rare and nasty Cancer. Not a how-to guide but ideas and observations during my experience so far. There are only a few SS survivors publishing and I've found their information helpful and reassuring. The site is also to update my wonderful supporters on my progress.
Image above was pre-diagnosis by my daughter of the 'Alien Baby'. This tumour has been removed but the battle to eradicate the disease continues.
We are meeting with our sarcoma specialist this Wednesday the 8th to get pathology results back and to discuss progress from surgery and next steps.
One thing we are hoping for is to get to NED status, which means clinically they can't detect the cancer or any secondary spread. More on what NED is on this earlier post. This doesn't mean that the cancer is gone but it is a very good milestone to get to. It will take a couple of years of positive tests and staying in NED status for the prognosis to improve.
Kat has found a suitable bottle of wine which is on ice for later in week.