1 July 10 : What a terrible job being a messenger with bad lab results. The consultant we were meeting was unexpected away and the job was left to a young registrar. It felt like a B grade movie, left waiting in a hospital waiting room and then in came the ashen faced young doctor and pitches the key line "it's bad news you have cancer, its high grade and very rare its called Synovial Sarcoma". He did OK but was ill prepared and lacked knowledge for the dozens of question we had. Although bad news it was good to at least get some definitive information on what we were fighting.
I have probably had this cancer for a couple of years, just today I have a diagnosis and a name for it. What has changed, it's seems everything.
My journey: Living with and overcoming Synovial Sarcoma. A rare and nasty Cancer. Not a how-to guide but ideas and observations during my experience so far. There are only a few SS survivors publishing and I've found their information helpful and reassuring. The site is also to update my wonderful supporters on my progress. Image above was pre-diagnosis by my daughter of the 'Alien Baby'. This tumour has been removed but the battle to eradicate the disease continues.
Heya Gary,
ReplyDeleteI've been following your blog closely. hard times my friend, hard times...
Be strong.
Malcolm