Kat has been a lot more active with blogging updates than I, so make sure you check her site at:
katandadls.blogspot.co.nz
My journey: Living with and overcoming Synovial Sarcoma. A rare and nasty Cancer. Not a how-to guide but ideas and observations during my experience so far. There are only a few SS survivors publishing and I've found their information helpful and reassuring. The site is also to update my wonderful supporters on my progress. Image above was pre-diagnosis by my daughter of the 'Alien Baby'. This tumour has been removed but the battle to eradicate the disease continues.
Wednesday, April 10, 2013
Wednesday, April 3, 2013
Home Sweet Home
After a number of weeks in hospice we've decided to check out and move home. Medically things have been stable for a few weeks and I've come to terms with oxygen concentrator and bottles and the associated issues and risks. I felt very safe at the Otago Community Hospice, the team there are fantastic and I've received amazing care. We've been able to simplify and reduce medications and they are now practical and easier to manage at home. For me the Hospice been an amazing place of healing.
So far we've been at home over sunny Easter and it's been fantastic. It's just great being in our home environment, with privacy and space. We've had all the kids out for various meals which has been just the best!!!! I've also managed to get through my first book and just loved being able to read again which I've only been able to do since a blood transfusion a couple of weeks back.
So another milestone reached, although this one an unexpected one.
Life is good and just appreciating the day by day enjoyment it brings.
Gary
Attached pic: favourite book reading deck. We have various seating arrangements on deck and I navigate myself up and down depending on sun and heat.
So far we've been at home over sunny Easter and it's been fantastic. It's just great being in our home environment, with privacy and space. We've had all the kids out for various meals which has been just the best!!!! I've also managed to get through my first book and just loved being able to read again which I've only been able to do since a blood transfusion a couple of weeks back.
So another milestone reached, although this one an unexpected one.
Life is good and just appreciating the day by day enjoyment it brings.
Gary
Attached pic: favourite book reading deck. We have various seating arrangements on deck and I navigate myself up and down depending on sun and heat.
Subscribe to:
Posts (Atom)